http://mylymphomastory.com Fri, 03 Oct 2008 03:44:59 +0000 http://backend.userland.com/rss092 en This was originally a post over on the Hodge Board, but thought it a good enough post for here: Well, hello! Some of you know me a little, and some of you have no freaking clue who I am! That's ok. I will still update you anyhow, lol. I fell off ... http://mylymphomastory.com/2008/10/02/the-true-feat-isnt-escaping-death-rather-learning-how-to-live/ I realized today that I havent been getting any of my email for this website.  I looked and the last email I got was on the 22nd, which was 5 days ago.  If anyone emailed me, I am afraid it has been lost in cyberspace somewhere.  I didn't have enough ... http://mylymphomastory.com/2008/09/27/email-was-down/ Oooh, what a fun day.  My daughter had a sleep over at the YMCA last night, and needed me to pick her up this morning.  I was glad to have her back, and also very anxious to get back home and get back to sleep as I have been up ... http://mylymphomastory.com/2008/09/27/my-day-at-the-zoowell-er/ Sooo.  Wow.  A post.  I promised one again soon and here it is.  I'm doing tons better.  Feeling mostly great.  Tired though.  Though, Brandon, that guy that came and saw me the one time at the cancer center - yes, the Hodgkin's survivor, told me that I will be tired ... http://mylymphomastory.com/2008/09/22/half-way-normal/ I just awoke from a dream. I was given a couple days to live.  They were able to give me some sort of something that would keep me strong enough the last couple days to not "feel the effects" of dying, but ultimately regardless of what happened, taking this stuff would ... http://mylymphomastory.com/2008/09/17/this-is-why-i-dont-sleep/ LOOK!  LOTS OF PICTURES!  Ok, so wow.  It's been a long 12 days since I've posted.  Has it really been that long?  Yup.  Unfortunately, I won't be able to make this an extremely long post, but I will cover as much as I can as fast as I can.  I ... http://mylymphomastory.com/2008/09/15/chemotherapy-my-ass/ Wow, so it's been awhile.  I have somewhat fallen out of touch with everything.  Real life and Internet life.  I spend most of my time in my room.  It's rare I come out anymore.  I'm just so tired and worn out and feel like crap most of the time.  The ... http://mylymphomastory.com/2008/09/03/bigger-better-and-fatter-than-ever/ Ok, so some of you know that I have been questioning for a couple months me being on the MOPP chemo regimen because I can't be on ABVD because of bad PFTs (pulmonary function tests).  I have also been really concerned because I have not have a PET/CT since May ... http://mylymphomastory.com/2008/08/22/pet-images-my-big-day/ I'm sitting in this darkened room for an hour. You have to do that to prep for a PET Scan. They give you what's called radioactive glucose, and after injected, it goes to anything active within your body. To make it not light anything up that shouldn't ... http://mylymphomastory.com/2008/08/22/its-not-so-berry-yum/ So, I feel like I have completely abandoned everyone. I probably haven't, it just seems like I have lost all contact with everything web. But the surprising thing is I have been on it nonstop. I have been trying to do a lot of maintenance to this ... http://mylymphomastory.com/2008/08/17/ants/